Every day, people are in terrible pain but medics say they are imagining it.
Students are missing school and university, while others miss work and life because they are in agony.
It takes them years to be diagnosed with their painful condition.
Some of them don’t get diagnosed at all and endure a lifetime of pain.
You haven’t heard their stories because these people are women, and their illness relate to their periods – and women’s pain, historically, has not been taken seriously.
For centuries, women and girls have been told that excruciating and heavy periods are normal.
It is anything but normal and is nothing short of scandalous that this mistruth continues to be told today.
Too many women are told their pain is all in their head.
- Doctors told me I'd suffered a miscarriage but I hadn't
- A mum having a miscarriage waited seven hours in A&E before being told they couldn't treat her
They are missing school, work and from living their life because they think painful periods are normal.
The Welsh Government had an opportunity to help change this by adding menstrual wellbeing to the curriculum.
But they refuse to and it will now be optional for teachers to inform young people about this.
This means that schools may choose not to cover this, or if they do, they may not do it in a meaningful way as it can be seen as a taboo topic.
Some teachers may not feel comfortable discussing it and others may not provide accurate information. The end-result will be considerable variation in the education that pupils across Wales receive.
This is undoubtedly letting the next generation of young people down, and will mean that the next generation will continue to be embarrassed to talk about menstrual health, and more importantly not know the symptoms of conditions that could cause years of physical and emotional pain.
This will mean people will continue to go undiagnosed, and potentially leave young people suffering for the majority of school life, without the support they need to manage their condition alongside their school work.
The Welsh Government has the opportunity to turn this around, but sadly, appear to be turning their backs on it.
Faye Farthing, Campaigns and Communications Manager at Endometriosis UK said: " Without young people learning about menstrual wellbeing in schools, menstrual conditions will continue to go unrecognised, marginalised, and underdiagnosed.
"It will also mean that young people could be left suffering in silence from the symptoms of menstrual conditions like endometriosis for the majority of their school life, having a potentially huge impact on their education, physical and mental health, and future career.
"The Welsh Government has a last opportunity before the curriculum is finalised to turn this situation around, and ensure young people in Wales understand about menstrual health and know when to seek help. In failing to do so, they are letting down the next generation of young people”.These women had to fight to be treated
There are many illnesses that relate to this.
Polycystic ovarian syndrome (PCOS) is thought to be the most common endocrine disorder found in women.
Around two million women in the UK are thought to suffer from endometriosis.
Then there is premenstrual dysphoric disorder (PMDD), early menopause, pelvic inflammatory disease, adenomyosis and fibroids, to name a few.
All of these are widespread and painful, and many women who experience them have had to fight to be treated.
There is a mountain to climb but that needs to start now.
Education is the passport to the future, Malcolm X said, for tomorrow belongs to those who prepare for it today.
So let’s prepare for it today.
We need to start in schools, at meaningful points in a child’s education, and we need to start now.
So what can you do?
You can talk to your children about what is normal. You can educate yourself. You can get a second opinion.
You can write to your MS (Member of Senedd) asking them to support this.
Together, we can start talking and teaching what is and isn’t normal, for the sake of future generations.
We are demanding better for Wales, because we deserve better. It's time to talk. Period.
If you would like to share your story, contact email@example.com.